Why did we set up this Charity?
There were various reasons for setting up the Charity:
- There is currently little information for the general public to make them aware they may have these conditions,
and how important it is to seek help.
- It became apparent that patients had nowhere specific to obtain information or support for either
Polymyalgia Rheumatica or Giant Cell Arteritis.
- The two conditions are relatively unknown and neglected, although widespread, and doctors on the front line often
do not recognise the early warning signs of these conditions, or know about some of their more serious complications.
- We feel that that there is a major unmet need for better service provision for the two conditions.
- There is no known cause or cure, and there is a demand for much needed research.
- With that purpose, our organisation has started part-sponsoring research into PMR and GCA.